Spina Bifida

Lending Library items are available to be checked out for two weeks to all North Dakota residents.

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Lending Library - Books (2)

Lending Library - DVDs (1)

Online Resources (2)


Children with Spina Bifida: A Parentsí Guide
by Marlene Lutkenhoff
Parents of children with spina bifida need a text that provides them with information in an easy-to-understand, nonfrightening, supportive way. Each chapter closes with insights from other parents. The chapters deal with issues parents will face, from prenatal diagnosis to adulthood legal issues, education health concerns, treatments, therapies, and causes.

Living with Spina Bifida
by Adrian Sandler, M.D.
Beginning with a clinical overview of the condition, chapters are arranged according to the developmental stages of life from birth to adulthood. Includes helpful glossary, listing of spina bifida associations and suggestions for further reading. (parents & professionals)


Project Eli
20 minutes
There is a special plan for each one of us before we are born. Some people live long lives to fulfill that plan, while others live only moments. Eli McGinley is one of those who lived only a few days but made a huge impact on the world around him.

Online Resources

Living with Spina Bifida: Toddlers and Preschoolers

Life with a toddler or preschooler is both fun and challenging. These young children experience huge mental, social, and emotional changes. They have a lot of energy and enthusiasm for exploring and learning about their world and becoming independent. Developing independence can be especially challenging for children with spina bifida. Parents should start helping their child develop independence early in childhood. This article from the Division of Human Development and Disabilities at the CDC offers some helpful advice to help parents.

Spina Bifida

Spina bifida is one of the most common birth defects in the United States, affecting some 1,500 babies each year. 2 Spina bifida happens during the first month or so of pregnancy and means that the baby’s spine did not close completely. This fact sheet from CPIR provides more information.

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